Comments on Girl Bleeder: Hemophilia Sucks

Rix,Thanks for pointing that out. Actually, there ...

2008-04-03T15:23:00.000-05:00

Rix,

Thanks for pointing that out. Actually, there are no documented cases of chitosan causing allergic reactions. More than 1 million bandages have shipped and there are no reports of negative effects.

Hi Pully. Actually, I have two boys with severe he...

2008-04-03T15:15:00.000-05:00

Hi Pully. Actually, I have two boys with severe hemophilia B. We transitioned them from port to arm pokes at around age 6. They've been infusing themselves since they were 8 (the oldest started at 8) and 7 (the youngest wanted to make sure he was poking younger that the oldest!)

And thanks for pointing out the shellfish thing. I looked it up when the comment was first posted but completely forgot the respond! It's also interesting to note that this same "compound" has been hailed as a weight loss drug.

Maybe I can use it to fix my periods and it'll help me lose some weight??

Here's the wiki link:

http://en.wikipedia.org/wiki/Chitosan

Can you imagine what would happen to a hemo with a shellfish allergy if they tried this product? *shudder*

My son still has his port, but I can imagine when ...

2008-04-03T14:42:00.000-05:00

My son still has his port, but I can imagine when we transistion him to peripheral sticks. When did your son learn to stick himself?

BTY Ely - KytoStat works for external bleeds only and please let others know your product contains shellfish! but thanks for the company plug.

Rix,There's a new product on the market called Kyt...

2008-03-28T15:09:00.000-05:00

Rix,

There's a new product on the market called KytoStat. KytoStat is as easy to use as a regular bandaid. Just apply it to the wound and it stops the bleeding. You don’t even need to wipe the blood away. In fact, the blood helps the chitosan in KytoStat to seal the wound.

This bandage is a good product for people with hemophilia to have in case of an emergency. I work for HemCon, the company that makes it, and am glad to answer any questions you have.

Rix, Wow. I can't even imagine, it's a cliche, b...

2008-03-26T08:46:00.000-05:00

Rix,
Wow. I can't even imagine, it's a cliche, but it really is harder to see our kids in pain (be it physical, emotional or mental) than to suffer ourselves.
I have two kids that have, in a way, been spoiled by good health. It makes me ashamed of the way they bitch about their braces, when I know your kids go through so much more.
Jennifer